It has been quite a week! The high point, however, was the baby shower for my daughter-in-law, Holly, on Sunday. (Photos coming soon!) The rest of the week wasn’t so good. Jennifer has been really sick for a couple of weeks and Johanna took her to the walk-in clinic 3 times this past week. First time the diagnosis was strep throat and she was sent home with penicillin. After 3 days she was worse so she returned and was sent home with a stronger antibiotic. She continued to get worse and on Sunday morning when preparations needed to be done for the shower that was in the afternoon, Johanna returned to the walk-in clinic with her for the 3rd time. While they were gone, my wonderful husband helped me prepare the food for the shower. He learned many valuable lessons in food prep, that he may need to know in the future, and his hands have never been so clean! She was sent to the hospital lab for some tests and was sent home with pain pills. Johanna returned home just in time to go to the shower with me and poor Jennifer had to stay home.
We had a wonderful time at the shower making sure my grandson will be suitably outfitted! By the time we returned home, Jennifer’s throat was almost completely swollen shut and her tonsils were terribly inflamed and infected. So Team Rosten (Mom, Dad, Johanna, and Jen’s friend, Jeff) loaded up and headed for the ER. The waiting room was packed so we braced ourselves for a long wait. However, within a very short time we were seeing a nurse for evaluation (triage) and were taken in for care. The nurse looked up the blood work from the morning and said that it hadn’t been marked for a rush and wouldn’t be back for several days. Great! Also, they hadn’t ordered a spot test for mono, which she was quite sure was Jen’s problem. The walk-in clinic had told her they would order the spot test in the morning……hmm. Anyway, she got a shot of steroids to keep her throat from closing up and then my poor baby got a terrible, burning muscle spasm from the shot! As if her throat wasn’t painful enough. We are relieved how quickly she is improving now as she continues on the prednisone and antibiotics for several more days. She was positive for mono so her recovery time is unknown.
In the meantime, my paper work arrived from Stanford. In looking it over, I became quite confused. My appointment was with the bone marrow transplant department and they were requesting copies of tests I haven’t had completed and contact info for all my siblings for tissue matching! My oncologist has just returned from vacation and someone finally returned my call Tuesday afternoon regarding the situation. Sure enough, my appointment was made with the wrong department! So, I no longer have an appointment on the 24th and several weeks have been wasted waiting. My oncologist was going to personally call and try to get this all straightened out and get a rush on an appointment for me. I think she thought I would be seen while she was away on vacation and be ready to move forward when she returned.
Another frustration this past week – In order to determine how long this disease has been brewing in my bone marrow, it was necessary to obtain all my medical records back to the point where there was a normal, healthy blood count. Unfortunately, in February 2005, just as my numbers were dropping and were at the bottom of normal, our wonderful family doctor became ill. We waited 6-7 months hoping he would be able to return to his practice, but at the end of that time he had to retire. It took several more months to obtain our records and get appointments with another doctor. Steve & I ended up seeing 2 different doctors. He has had a good experience and mine was not so good. Consequently, I was without a primary care doctor for a couple of years and just used the walk-in clinic when I was ill. It has taken me several months to get my records from the 3 visits with this interim doctor. She did a lot of lab work because I told her how fatigued and weak I felt. She said everything was fine; I just needed to lower my cholesterol, lose some weight and exercise more. Isn’t that what we all know anyway?! Well, I finally got my records only to discover that my labs were not normal – my white blood count, my red blood count and my immunoglobulins were all way below normal! I should have been referred to a specialist 1½ years ago!
Needless to say, I have been quite discouraged at times over the last few days, but am doing better. I keep reminding myself (and my family and friends keep reminding me!) that in spite of these frustrations and delays, the Lord has me in the palm of His hand and the timing of all things in my life are under His control.
I don’t know how people cope with life’s frustrations without knowing the Lord and having the prayer support of friends and family. It is my lifeline especially at this time! When I was at my lowest at the end of last week, “perfectly timed” phone calls and cards in the mail brought hope and encouragement. I continue to be touched by the way God speaks through my friends and family just when it is needed most!
Check back for this week's music lesson that will be posted later today or tomorrow!